Practical Clinical Tools

Patient Education

For a list of patient education fact sheets, visit the Patient Education page.

Transition Toolkit for Patients and Professionals

This toolkit helps patients gain a greater awareness of their health history and health needs as they transition into adult self-management.

View the Toolkit

 

Additional External Resources

Genetics, Including Klinefelter Syndrome and Turner syndrome

• Search for genetic conditions, rare syndromes
• Newborn Screen info
• Klinefelter Syndrome
• Turner Syndrome Society of the U.S. 1

Adrenal Insufficiency

• Stress Steroid Dosing and Weaning Recommendations
• Adrenal Insufficiency Resources

Bone

• Bone Mineral Density calculator with Z score adjustment for height
• Bone Physiology
• Elemental Calcium Calculator

Blood Pressure

• Blood Pressure Normative Data Tables

Growth

• Standardized Height and Weight Calculator NHANES
• Predicted adult height and seeing the SD for the growth velocity
• CDC clinical growth charts
  • Kids growth toolkit

Converting Units

• Conversion from conventional to System International (SI) Units

Cancer Survivorship

• Children’s Oncology Group Long-Term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers (COG LTFU Guidelines)

Obesity

• Childhood obesity

Puberty

• Ferriman Galway Scoring Sheet

Hyperinsulinism

• Congenital Hyperinsulinism

Celiac Disease

• Celiac Disease Resources

Polycystic Ovarian Syndrome

• PCOS fact sheet
• http://www.ae-society.org/sub/resources.php
• https://jeanhailes.org.au/health-a-z/pcos

Diabetes Resources

• http://www.childrenwithdiabetes.com
• http://www.tudiabetes.org
• http://www.estudiabetes.org
• https://myglu.org/
• http://www.barbaradaviscenter.org (click on clinical resources)
• http://www.diabetes.org
• Insulin dosing calculator (Nationwide children’s)

Transgender Resources

• http://transhealth.ucsf.edu
• http://www.transstudent.org/sites
• http://www.nytimes.com/2015/05/06/opinion/transgender-resources.html?_r=0

Family Resources – Disorders of Sex Development (DSD) or Sex Chromosomes

• Animations on Genitalia Development (Toronto Hospital for Sick Children)
• Accord Alliance
• Advocates for Informed Choice (AIC)
• Androgen Insensitivity Syndrome Support Group
• CARES Foundation (Congenital Adrenal Hyperplasia Education & Support)
• DSD Guidelines a project of the Consortium on Disorders of Sex Development
• Hypospadias & Epispadias Association
• The Magic Foundation
• MRKH Organization – A support group for women with Mayer-Rokitansky-Kuster-Hauser Syndrome (also known as MRKH, Mullerian Agenesis, Vaginal Agenesis, and Congenital Absence of Vagina).